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THE JOURNEY

Join me and Owen as we document our days. We want to be able to look back at the flowers we saw along the way, to be able to remember the climbs we made, and to not take things that we often take for granted. Please create a profile so that you can be part of our book. Post comments to us so that we know you are with us!

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Writer: Mako Barr
Mako Barr
Jul 17, 20242 min read

24. R20, C30 - Tuesday, July 16, 2024

Ten more R’s and 12 more C’s to go! It was crazy at the house yesterday. We had folks tackling the floor in the craft room. Owen blasting...

 
 
 
Writer: Mako Barr
Mako Barr
Jul 14, 20241 min read

23. Sesi

Meet Sesi (short for Sesame Street)

 
 
 
Writer: Mako Barr
Mako Barr
Jul 13, 20242 min read

22. C27 - Saturday, July 13

Two and a half more weeks left of this round of radiation and chemo. Owen is doing well but he is starting to get a bit stir crazy with...

 
 
 
Writer: Mako Barr
Mako Barr
Jul 10, 20241 min read

21. R16, C24 Wednesday July 10

This week has been tough. Hurricane Beryl took out Munchkin’s power. The Muffin went to the ER. The Muffin is fighting a fever and is...

 
 
 
Writer: Mako Barr
Mako Barr
Jul 9, 20241 min read

20. R14, C22 Monday, July 8

Hurricane Beryl did some damage in Katy. Mis lost her power for a few hours but it was restored. And then the Muffin emerged with an...

 
 
 
Writer: Mako Barr
Mako Barr
Jul 5, 20241 min read

19. First Visitor

We put up that bird feeder thingy yesterday. It’s like birds knew it was the Fourth of July and were ghost!!! They weren’t going to be...

 
 
 
Writer: Mako Barr
Mako Barr
Jul 4, 20243 min read

18. C18

Week 3 half way done. It is July 4, 2024. Owen has had a roller coaster of a week thus far. Physically, he wasn’t feeling the best but a...

 
 
 
Writer: Mako Barr
Mako Barr
Jul 2, 20242 min read

17. R10, C15

Five weeks to go. Our hospital visit was followed by the invasion of the first floor packers 🫠. We asked the reconstruction folks to do...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 28, 20242 min read

16. R9, C12

It’s Friday. Wednesday was a difficult day for us. Difficult for Owen because everything was an irritant. Difficult for me because I...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 26, 20242 min read

15. R7, C10

Owen had a good day yesterday, R6, C9. He had some pep in his step and made it a productive day at home while I was working. Today,...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 23, 20242 min read

14. One Week down, Six to Go

Week one is done today. He will be R5, C8 (fifth radiation treatment, eighth chemo). There were two notable days of nausea and fatigue...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 22, 20241 min read

GRAY MATTERS

Gray is the color that represents Brain Cancer Awareness. Please post a picture of you wearing gray or record a short video to Owen to...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 21, 20241 min read

13. For the Ms. Rachel Fans

Row, row, row your boat gently down the stream. If you see a crocodile, don’t forget to scream. AAAAAGGGGHHHH!!!! (Volume on!!) The...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 20, 20241 min read

12. R3, C4

Because yesterday was Juneteenth, Owen got a break from radiation. He definitely feels the affects of the chemo as he deals with the...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 19, 20241 min read

11. Help me please

I want desperately to help the medical community advance research in the battle to find a cure for GBM. Please help me raise awareness...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 18, 20241 min read

10. R2, C2

I remember my days at LRMC. I probably got about 15,000 steps in daily, at the least. Yesterday, while Owen was in getting his first...

 
 
 
owenbarr1
Jun 17, 20241 min read

Day 1

Day 1 of Radiation and Chemotherapy for my Glioblastoma stage 4 (brain cancer) I don’t know what to expect but I’m praying and fighting...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 17, 20241 min read

9. R1, C1

Radiation day 1, Chemo day 1. Owen’s medical team has an aggressive plan of attack which involves 30 radiation treatments and 42 days of...

 
 
 
Writer: Mako Barr
Mako Barr
Jun 15, 20242 min read

8. Battle Begins Monday

It’s hard to believe that we found out about the pathology last week. In this last week, we have spent much time with Owen’s new...

 
 
 
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